Participants
The Yorkshire Health Study aims to help improve the health of the people of Yorkshire.
Welcome to the Yorkshire Health Study, Yorkshire's largest health study following the lives of thousands of people in Yorkshire.
Since 2010 over 73,000 people have filled in our Health Questionnaire to help research in the region. These questionnaires have provided valuable insight into the health of the people in Yorkshire, in order to improve services for the people who need them most.
In addition over 7,000 people have helped researchers by taking part in research studies in the region. Some people have been interviewed or filled in special questionnaires, while others have tested new health treatments or services.
For more information see our article in the Sheffield Telegraph or watch our video on Sheffield Live TV
Who can take part
Anyone aged 16 or over living in the Yorkshire and Humber region can take part in the Yorkshire Health Study and it takes only 10 minutes.
This is your health, and your research. And you can be involved as little or as much as you like.
Why do you want to know about my health?
By looking at the health of thousands of people living
in Yorkshire, the Yorkshire Health Study has the
potential to make important health discoveries. The
information you provide us with will benefit the lives
of people across Yorkshire so that Yorkshire is a
healthier, happier place to live.
How do I sign up and what am I signing up to?
You can sign up to the Yorkshire Health Study by filling
in our short health questionnaire.
Once you have completed the questionnaire this
information can then be used in future research. If you
provide contact details and agree to be contacted again,
we will send you a questionnaire every 3-5 years. You
may also have the opportunity to take part in research
studies in the region, however this is completely up to
you.
What will you do with my records?
With your permission the Yorkshire Health Study
would like to follow your health by linking with your
health records. At the end of the health questionnaire
we ask whether you allow us to link the information
you have provided to the information that the NHS
holds on any visits you may have made to NHS
hospitals.
We call this way of collecting data 'data linkage'. Again
this completely up to you. For information about how
weuse your health records, please click here.
What will you do with my information?
All your answers will be made anonymous and
only used for research purposes. These will be
stored safely on our study database. Your contact
details will also be stored here if you agree to be
contacted again. Your contact details will never
be shared with any companies or organisations.
it is our commitment to you to keep all of your details
strictly confidential. For more information on this,
please click here.
Thankyou
We would like to say a huge thankyou to everyone
who has filled in our questionnaires. Let's work
together for a fit and healthy Yorkshire. If you have
any questions,
please do not hesitate to get in touch
by email (yhs@sheffield.ac.uk)
or phone (0114 2220896).
See us on the university website, and download our
General Data Protection Regulation (GDPR):
According to data protection legislation, we are required to inform you that the legal basis we are applying in order to process your personal data is that ‘processing is necessary for the performance of a task carried out in the public interest’ (Article 6(1)(e)). Further information can be found in the University’s Privacy Notice https://www.sheffield.ac.uk/govern/data-protection/privacy/general.’
As we will be collecting some data that is defined in the legislation as more sensitive (information about your health), we also need to let you know that we are applying the following condition in law: that the use of your data is ‘necessary for scientific or historical research purposes’.
Data Controller: The University of Sheffield is responsible for the secure management of data.
Data storage and processing: data will be stored in password protected computers on the secure university network. Only members of the study research team will have access to it; work package leads will act as custodians of the data. All University of Sheffield researchers have undergone information security training and follow University of Sheffield Information Security and Data Protection policies.
Data retention: identifiable data will be kept for the duration of the project. After this, all identifiable data in computer files or on paper will be destroyed. Only anonymised data will be kept for future use in research and publications.
If you have a complaint about the management of data contact:
Anne Cutler
Data Protection Officer
University of Sheffield
Email:
Tel. 0114 222 1117
“I have got two grandchildren...when I die
they might discover something that
helps our family along the way and
obviously others as well"
(Mary, aged 61)
"Services will not improve if we do
not get feedback about whether what
we are doing is useful or not”
(Jamie, aged 26)
"I filled it in because I thought it is
a questionnaire about making things
better, and at the end of it all, it was
all about research,"
(Neil, aged 45)
"I've joined because my husband has
health problems and his GP doesn't know what to do.
I want to help improve healthcare for him and my family in the future,"
(Jayne, aged 30)
“I would like to know that my son is being looked after by good health and there is a good health care system set up for him”
“It’s much easier to build a service around people’s needs rather than making assumptions”
“I think young people should take part in these kinds of surveys so their needs are met”